Site Descriptions and Leaders

Northwestern University Feinberg School of Medicine
Jin-Shei Lai, Ph.D., OTR
Amy Paller, M.D.
Medical College Wisconsin (MCW)
Julie Panepinto, M.D., M.S.P.H.

This center will enhance understanding of the effects of asthma and atopic dermatitis (eczema) on children’s well-being. Investigators are using PROMIS tools to assess fatigue, pain, mobility, physical function, depressive symptoms, anxiety, stress, and peer relationships. The center is also developing a new PRO for itch. Children are being studied in in multiple settings (general population, doctor’s office, hospital). An ethnically and socioeconomically diverse sample of patients is being drawn from three ongoing pediatric asthma clinical trials and an Eczema Center.


Participating Sites:

1. Boston Children's Hospital

2. Washington University

3. University of Illinois at Chicago 

MCW is helping researchers to better understand how sickle cell disease, asthma, and type 1 diabetes affect children’s quality of life. Researchers are evaluating tools that measure pain, physical activity, stress, strength, and family relationships. The project is also focused on understanding how environmental factors (including socioeconomic factors) at the individual and community levels affect children’s health. The research is being conducted in emergency department and health clinic settings.

Participating Sites:

1. University of Wisconsin, Madison

The Children's Hospital of Phildelphia
Christopher Forrest, M.D., Ph.D.

CHOP is leveraging existing clinical studies to understand the experiences of children with Crohn’s disease and chronic kidney disease and cancer survivors. The investigators hope to learn how these diseases influence children’s pain, fatigue, stress, and sleep. The CHOP center also administers an Infrastructure and Opportunities Fund for the entire Consortium to support resources that provide additional assistance or technical expertise for projects undertaken by PEPR investigators.​

Participating Sites:

1. St. Jude Children's Research Hospital

2. University of North Carolina

Duke University School of Medicine


Bryce Reeve, Ph.D.

Laura Schanberg, M.D.

The Duke team is focusing on understanding how living with juvenile idiopathic arthritis, lupus, cancer, or inflammatory bowel disease affects children’s well-being. Researchers will leverage several pediatric data collection networks to test tools that assess pain, fatigue, physical function, stress, anxiety, depressive symptoms, sense of meaning and purpose, quality of family life and peer relationships.

Participating Sites:

1. University of North Carolina